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Welcome to the Georgia Rare Disease Advisory Council
A Rare Disease Advisory Council, or RDAC, gives individuals with rare diseases a consolidated voice in state government by advising policymakers on critical issues related to healthcare access, insurance coverage, and the diseases themselves.
The National Institutes of Health defines a rare disease as a condition affecting fewer than 200,000 individuals in the United States.
Our Purpose
The purpose of the Georgia RDAC is to advise the General Assembly and other state agencies and departments on the needs of individuals with rare diseases living in Georgia.
You are encouraged to explore our website to learn more.
Rare Disease Advisory Council Meetings
JAN
01
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Virtual Meeting
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Patient Listening Session
The power of the patient journey is important to understand how current legislation impacts you and your family. Coming soon: We will start offering listening sessions to invite you to share your experiences and tell us how we can help you and your loved ones.
Rare Disease Needs Assessment
Are you or someone you care about living with a rare disease? Georgia’s Rare Disease Advisory Council (RDAC) welcomes your feedback on experiences navigating the disease. Taking the survey can help us better understand the needs of the rare community in Georgia. When you decide to take the survey and consent to share your responses, your feedback can be used to help develop and prioritize the Georgia Rare Disease Advisory Council’s efforts and goal of improving the lives of people impacted by rare diseases in Georgia.
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